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#mnd

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Rich Stein (he/him)

"This could now become the gold standard for how covalent drugs are developed from now on," says [Jeffrey] Agar, an associate professor of chemistry and pharmaceutical sciences [at Northeastern University].

The goal is to make the technique free and available to labs small and large, part of what Agar refers to as the "democratization of science."

"We decided not to patent this," he says. "Just take it, use it and make drugs safer."
phys.org/news/2025-04-free-too
#ALS #MND #ELA #SLA #DrugDiscovery

Phys.org · Free tool streamlines ALS drug discovery with mass-spectrometry based modelBy Cynthia McCormick Hibbert
Public
Mark H

We're down at the Rose in June pub here in Portsmouth (with @MathC amongst others) for the annual charity folk and beer festival. Over fifty ales and ciders, folk singers, Morris dancers, and all raising money for the Motor Neurone Disease Association. Great cause, great event.

Have I drunk enough to sing along with sea shanties? You bet I have!

In a pub garden with patches of dry grass and dirt ahead of us and trees and houses framing the view. It's a large garden, holding a few hundred people on benches and standing in crowds around the Morris Dancers performing just in front of us. It's a sunny day with fair amounts of white cloud in the sky.
#Portsmouth#Pub#Beer
Public *
rodlux

Rob Burrows Tribute

His death was very sad, but during his difficult time Rob Burrows did so much for #mnd. He shows that while sports people are remembered for their sport, they often go onto make even bigger contributions elsewhere when they themselves face a huge difficultly.

#MND is a terrible disease, a close family friend died from it a few years ago. It can progress very fast, and is terrible to watch.

news.sky.com/video/rob-burrow-
(Video not available in all countries)

Thanks (...)

Sky NewsRob Burrow: Minute's silence held ahead of Leeds Rhinos and Leigh Leopards matchBurrow, who was diagnosed with the degenerative disease barely two years after ending his playing career, died earlier this month at the age of 41 after a four-and-a-half-year battle.
#robburrows#sport#leeds
Public *
Crimperman has moved

As someone who lost his mother to I know only too well what a horrible disease it is for a family to endure.

Rob Burrow (and Kevin Sinfeld) did a lot to raise the issues around it and I thank them from the bottom of my heart for the way they brought it to the fore.

My deepest sympathies are with his family and all those Rob leaves behind.

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