PKU and being 'hangry'. Satiety (feeling full) can be a problem for those with PKU. Here are a few tips for those following a low-protein diet.
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So, I've been alternating so much between #KetoPKU and carbs #PKU diet in the last weeks that I somehow became a metabolic machine. 
I now have a studied blood ketometer and even if I ate near 150g of net carbs yesterday, I still had ketones in my blood at noon today. 
This is incredible news for me as maintaining the #KetoPKU diet for a long time is extremely hard for the will power.
La meilleure fonctionnalité de l'application Substack. Ouvrez le son!
The best feature of the Substack app. Turn on the sound!
April's update is PACKED with:
- 
Easter tips,
- 
ideas for school holiday baking,
- 
new brain injury research,
- 
and a chance to report on the NSPKU conference.
Sign up today and be the first to get #PKU [https://pkutalk.com/tags/PKU] news,
#low [https://pkutalk.com/tags/low]-protein recipes, mental heatlh tips in your
inbox!
#LivingWithPKU [https://pkutalk.com/tags/LivingWithPKU] #PCU
[https://pkutalk.com/tags/PCU] #Phenylketonura
[https://pkutalk.com/tags/Phenylketonura] #PKUFood…
April's update is PACKED with:
- Easter tips,
- ideas for school holiday baking,
- new brain injury research,
- and a chance to report on the NSPKU conference.
Sign up today and be the first to get #PKU news, #low-protein recipes, mental heatlh tips in your inbox!
#LivingWithPKU #PCU #Phenylketonura #PKUFood #RareDisease #BrainInjury #MentalHealth
PKU was discovered in 1934, but was considered untreatable for decades. Then, a team at the Birmingham Children’s Hospital took up the challenge...
#PKU #LivingWithPKU #Phenylketonuria #Birmingham #RareDisease #RareDiseaseAwareness
The fantastic @poconnor has released a new newsletter about the origins of PKU. You can read it here:
PigPen: Pauline O'Connor, author & advocate. · Origins of PKU treatment, Phenylketonuria, Birmingham, UKProf. Anita MacDonald presented the origins of PKU treatment on an afternoon of PKU legends, both past and present.
Sunday fun day in Druids Glen making some low protein sweet and savoury
#PKU #Metabolic #Sauerkraut #Toasties #Muffins #Ireland
PKU-Friendly, low & no protein Easter Ideas from the team at Birmingham Children's Hospital!
Our workplace has moved to a new location. It's lovely, but it's also equally frustrating to someone like me who has PKU.
Happy St. Patrick's Day Thanks Grandma for my Celtic genes including #PKU! I'm raising a glass. Did you know pregnant PKU carriers have lower risks of spontaneous miscarriages from mold toxins during epic famines? New column today at my author site -> https://jjbrownauthor.com/journal-blog-posts/ #LuckOfTheIrish #StPatricksDay
Blood test results to know your phenylalanine levels in 30 minutes? It's possible!
Hoping this might help people:
Information on financial support for those in the UK with Inherited Metabolic Disorders (IMDs). Including links to information for support other countries (below article).
PigPen: Pauline O'Connor, author & advocate. · Financial Support with PKU, rare disease, low-protein dietsInformation on financial support for those in the UK with Inherited Metabolic Disorders (IMDs). Including links to information for support other countries (below article).
Spring news for subscribers: 
new UK patient guides, 
updates on the NSPKU conference and activity weekend, 
plus insights into brain injury rehab.
Also, my Low Phe ABC book is almost here!
Subscribe for more, get a FREE book, & join the conversation.
New #openaccess publication #SciPost #Physics Core
Phase transitions in quantum dot-Majorana zero mode coupling systems
Yue Mao, Qing-Feng Sun
SciPost Phys. Core 8, 031 (2025)
https://scipost.org/SciPostPhysCore.8.1.031
Metabolic.ie PDF of handy phrases in a few European languages for folks with PKU when we’re travelling out of the anglophone bubble. #PKU #MetabolicDisease #RareDisease #PhenylKetoneUrea
https://metabolic.ie/wp-content/uploads/2024/10/PKU-Translations-2.pdf?fbclid=PAZXh0bgNhZW0CMTEAAaY_t7wtD10TVhLdLXlAfPc_qqXAFEs1jRtD1im9hd9_9t4zqvRN8tMiNsc_aem_Ck5Ibj3eyH_SF8VeA5bSXw
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